Wednesday, May 16, 2007

Round 2

Back to NY. Monday I had my first dose of High-Dose Methotrexate (made a correction to my first post - i swapped the drug names, whoops) and i am so happy to report that i'm doing awesome. This drug is a bit weaker than the first two, so my blood counts are up and i'm feeling good and eating like a pig. I lost about 10 lbs. after my first treatment so this week i am taking advantage of my non-nausea and am trying to bring my weight back up.

I do love this hospital but the one thing i am having trouble tolerating are the vast majority of smells. The smell of coffee, alcohol swabs, and the absolute worst - saline. Before they draw blood from your lines or inject you with chemo, they always have to flush your lines with saline to clean them out. As soon as they inject it, you get a rush of the scent and taste in your nose, mouth and even eyes. It is the strangest sensation ever. I read a few stories of cancer patients that said the exact same thing. I always used to love the smell of "clean", sterile hospital-type things. But now, yyyuck. I guess i am associating these smells with the feeling of pain and the overall reason that i am here.

More and more hair is falling out, and so this weekend i think i am getting rid of it all. I wake up and find it in my nose, eyes, socks, pants etc. and it is just itchy and depressing (you guys know i am a hair fanatic). So it will be hats and scarves from now on. Also, the chemo effects your tastebuds. Anyone who knows me well enough knows my love for chocolate. Guess what guys? The thought of it makes me sick to my stomach! I can't believe it myself. All i find myself craving (candy-wise) are really gross sugary children's candy. Like gushers fruit snacks and lifesavers and all of the candy i've always despised because it tastes like pure sugar. How very strange...

I am getting more and more comfortable here in NY and at the hospital. IV machines beeping and children screaming start to swirl together and just form a backdrop of the daily visits. On my first day of chemo i was all set up in my room, IV started dripping, and all of a sudden we hear a child screaming bloody murder. My nurse comes in and says "don't worry, we are not murdering children over there! It is just the chemo". Turns out there is a type of chemotherapy that the nurses can inject directly into tumors with a needle and it is very painful for the children since it attacks the tumor immediately. They keep these rooms far off but the shreaking bounces all over and down the hallways. I can't put the sound to words but trust me, it is something you'd never want to hear. I walk down the hallways and study each patient, fingers crossed that i will see their hair start to grow back some day soon and that those tears will subside.

Just wanted to give a quick update to let you know that i'm doing well, it's nap time for me. I miss you all!

12 comments:

MEL said...

WHATS UP LOOKIN GOOD MY PRAYERS ARE WITH YOU I LOVE YA BIOTCH
XOXOXOX MEL

Andrea Stevens said...

Hey Kell. Good to hear you are doing well and to hear that you you are eating well. Are you coming to work next week? Can't wait to see you!

-Andrea

RB said...

When my dad was in the ER, a baby came in to the roome next door...I dunno if it had been burned or what the hell happened, but it was all red and bloody and the screams were GNARLY...it couldn't have been more than 6 or 8 months old.

And as much as I won't get into that day right now (my dad's last day on the planet) when that baby came in, I almost totally forgot about what was going on in my own world and my dad's and was worried sick over the little one...

So yes, I've heard it before and it was pretty insane.

Glad you are writing, Kelly. It's good for you and everyone...hell, maybe it's your next career. We can team up...

sacredyuja said...

Hey lady k....glad to see a post from you :) I'm shocked to hear the news about chocolate! [darn that basket of chocolate!] Next time it'll be a huge basket of Gushers and other childhood candy for sure! [gushers win by far though!] Miss you so much but
thinking of you every day getting stronger and stronger is comforting in itself.
<3
Jen J.

Unknown said...
This comment has been removed by the author.
Unknown said...

glad to hear you are doing better. and gushers are way better than chocolate anyways. ;) i remember on halloween like 7 years ago we traded chocolate 4 sour candy!

Deodato Pangandoyon said...

Hey luv, miss ya! When can I visit you again? I can't wait to see us bald together. Victoria recommends pedialyte ice pops cuz they contain electrolytes. I'll bring ya some next time I visit you--Deo

Jaclyn, Anze Erik and Mark said...

Kelly- you are simply amazing! I'm happy to hear that your appetite is back, but sad about your chocolate aversion! I hope that comes back, I have a big bag of M&Ms I'd love to send you :))
Stay strong woman!

Matt said...

I'm glad your doing better!!
This calls for a gushers party :-)
You won't believe i just saw new *moist tissues* for body and hands!

jenny said...

whats up kellerz..glad to hear your doing well...there isnt a day that goes by that i dont think bout ya...my prayers are with u ..keep ur head up...youll be fine! Love ya cous xoxox

Unknown said...

Pedialyte Pops are the bomb! I miss you, luv! I hope I get to see you soon! You're in my prayers day and night xoxoxo

JoAnn said...

Kelly! What I wouldn't do to be siting next to you breaking out in song at 4 PM! My god, your spirits are amazing and your writing while emotional puts a a smile on my face to know you still have that Kelly zing! I'm sure you are overwhelmed with your own appts, visits, etc., but when the smoke has cleared, I would love to get together - I think about you all the time and know you will pull through this. Talk to you soon,

Love, Jo